One-Stop Resource Guide:
This is a resource guide provided for you by United Cerebral Palsy of Nebraska. We attempt to keep resources current and provide accurate and valid sources. The sources range from non-profits, government agencies and for profit companies. United Cerebral Palsy of Nebraska does not endorse any company listed below, and is not responsible for the content of the sites, but simply provides the information as a resource for you.
Every person with Cerebral Palsy is unique. If you notice a link that no longer works or have information that you would like for us to consider adding, please contact us.
Resources from United Cerebral Palsy (National):
- My Child without Limits-a program of UCP, provides a wealth of information and resources for families and caregivers of individuals with cerebral palsy and a range of other disabilities.
- My Life without Limits – a program of UCP, a resource for adults with disabilities and their families tackling issues such as access to college, employment, transitions, relationships and other topics.
- Each of us Remembers – A booklet published by UCP with stories and information from parents. It covers reacting to the news about a CP diagnosis, talking to family and friends about it and what to do next.
Information about CP and Living with CP
Cerebral Palsy Guide – A national organization that helps families and individuals affected by cerebral palsy. They provide educational material about CP so that parents and caregivers can be better prepared for raising a child affected by this developmental disorder. Phone: 1-855-329-1008
Cerebral Palsy Guide-Book for Parents and Children About CP – Whether is is a fun adventure story that you and your child read together or an informative book that you enjoy on your own, there are many valuable resources available that can provide you with all you need to know about cerebral palsy.
CPNow – Provides educational resources, initiates wellness campaigns and funding research focused on addressing the early interferences in brain development which can lead to CP.
CP Tool Kit – This explores both the clinical aspects of diagnosis and treatment, and the impact on the family, with practical and positive advice from other parents of children with cerebral palsy. It also has a glossary of terms and a number of personal stories from parents and adults living with CP. Subscribe to the Foundation newsletter to download the PDF version of the tool kit here
Early School Years Fact Pack – This fact pack has been developed to assist teachers, teacher’s aides, students and parents in learning more about what might be helpful for children with cerebral palsy in the early school years.
Getting to Know Cerebral Palsy – A training resource for facilitators, parents, caregivers and persons with cerebral palsy, particularly in low resource countries. It promotes a participatory learning approach where parents can increase their knowledge and skills in caring for a child with cerebral palsy in an understanding environment. Available in English and Spanish.
My Child at Cerebral Palsy.org -The ultimate resource for everything cerebral palsy. Phone: 1-800-692-4453
Special Needs Mom – An on-line social network for families of children with special needs to connect, find information, share and offer support, and be inspired.
Walk in Our Shoes – A community forum to connect individuals touched by cerebral palsy directly with one another.
World Cerebral Palsy Day – learn about our 6 key areas of focus and help create a global movement for children and adults with cerebral palsy
Personal Touch Healthcare Apparel – Adaptive clothing, hospital clothing, incontinence products, sleepwear, robs, adult bibs, nonskid slipper socks and other disposable products.
Professional Fit Clothing – provides adaptive clothing and products for people with special needs. Includes adult bibs, pica clothing, jumpsuits, and elastic waist pants.
Silverts – Adaptive clothing for women and men senior clothing, elderly clothing, shoes and slippers.
Therawear – Supplies support socks, compression stockings and protective seamless socks for diabetes designed to promote health for both adults and children.
Heartland Mobility – Serving Nebraska and surrounding areas with wheelchair accessible vehicles, handicap vans, wheelchair lifts, hand controls and more. Locations in Omaha & Iowa City, Iowa
Mobility Motoring – A local resource for wheelchair accessible vans and carries a full line of adaptive equipment products. They provide financing and free evaluations. They also install, diagnose, maintain and repair adaptive equipment.
Siebert Mobility – Serving Nebraska, Iowa and Arkansas with wheelchair vans, lifts and mobility products.
Wheelers Accessible Van Rentals – Wheelchair van rentals throughout Nebraska in the Omaha and Lincoln areas.
Durable Medical Equipment
Fashionable Canes-Many varieties of canes, ice grippers, quad canes, canes for the visually impaired and folding canes.
Frontier Home Medical – Home health supplies, mobility equipment, home modification equipment. Locations in Nebraska are: Cozad, McCook, Gothenberg, Holdrege, North Platte, Lincoln and Omaha.
Jim’s Home Health Supplies – Provides a full range of medical equipment and healthcare supplies, relating to bathroom safety, mobility and respiratory needs along with compression stockings, blood pressure monitors and more. Located in Lincoln, NE.
Kohll’s Pharmacy and Homecare – Provides access to a variety of needs, including durable medical equipment, lift chairs, wheelchair vans, home modifications, vaccinations, pharmaceutical needs and more. Locations in Nebraska include Omaha and Lincoln and Malvern, Iowa.
Liftware Level – Uses electronic motion-stabilizing technology to keep your utensil level, regardless of how your hand or arm twists, bends, or moves to help hold a utensil at the angle needed to enjoy any meal. Liftware Level is designed to help people with limited hand and arm mobility, which may be related to cerebral palsy, spinal cord injury, Huntington’s disease, or post-stroke deficits, eat more easily.
Mid Nebraska Mobility, Inc. – Mobility equipment, home modification, home health supplies. Locations in Nebraska are: Kearney and Grand Island.
Nuprodx Inc. – rovides access to a variety of shower chairs and tub/slider systems, including pediatric options. Also has some wheelchair accessory options available.
Shopko-Home Health Care Products – Provides access to a variety of health care needs, including daily living aids, items related to bathroom safety, canes and crutches, transport chairs, walkers and more. Several locations throughout Nebraska, see site for details.
Total Respiratory and Rehab – Mobility equipment statewide, home health supplies and home modifications in Omaha and Lincoln areas.
Triumph Medical Services LLC – Sell, rent and service many different brands of durable medical equipment. Locations in St. Louis, MO. and Springfield, MO areas
Walgreens-Home Health Care Solutions – Provides access to a wide variety of health care needs, including mobility equipment and accessories, daily living aids, items related to bathroom safety, bedding accessories, canes, crutches, transport chairs walkers and more.
Family & Caregivers Support:
American Foundation for the Blind – AFB works to remove barriers, create solutions, and expand possibilities so people with vision loss can achieve their full potential.
Bookshare – An accessible on-line library, Bookshare opens up the world of reading for people with print disabilities. If someone cannot read traditional print books because of visual impairment, physical disability or severe learning disability, Bookshare can help!
Community for Accredited Online Schools – Provides vocational career options, resources, scholarships and financial aid and transitioning/ongoing support options for individuals with physical disabilities, learning and cognitive disabilities, visual impairments, and hearing impairments. This site promotes thriving in a trade school with a disability and also provides adaptive tools to succeed on the vocational path.
Disability is Natural – The mission is to encourage new ways of thinking about developmental disabilities, in the belief that our attitudes drive our actions, and changes in our attitudes and actions can help create a society where all children and adults with developmental disabilities have opportunities to live the lives of their dreams, included in all areas of life. There are hundreds of articles to read, download and share.
Family Caregiver Alliance National Center on Caregiving – Supports and sustains the important work of families nationwide caring for adult loved ones with chronic, disabling health conditions. Including caregiving issues and strategies, classes/events, support groups, and the Family Caregiver Support Program (FCSP), which offers some supplemental services, such as transportation and home modifications.
Partnership on Employment and Accessible Technology – PEAT promotes accessible technology and universally designed technology as a tool for creating a productive and inclusive workforce. They aim to help people come together and make technology more accessible for all employees.
People First – Promotes self-advocacy and provides access to groups of people with learning difficulties, people with intellectual disabilities, people with developmental disabilities and/or people with disabilities who speak up for themselves and work to improve the lives of their members.
National Autistic Society of the UK – Article about social skills for adolescents and adults. Offers information about conversations, making friends and socializing, telling people you’re autistic and where to find out more.
The Arc – Promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetime.
Funding and Financial
SR Education Group’s guide to the 2017 Top Online Schools for Students with Disabilities provides a comprehensive breakdown of accredited schools that offer online degree options for students with disabilities. Additionally, our guide to the 2017 Most Affordable Online Colleges for Students with Disabilities ranks accredited institutions with online degrees that combine exceptional accommodations for students with disabilities and affordability. These rankings work both separately and together as excellent resources for students with disabilities pursuing higher education in an extremely supportive environment. Here is how SR Education uses a methodology for determining rankings.
Dream Factory – is the largest children’s wish-granting organization for children ages 3-18 that does not limit its mission to children who have life-threatening illness.
Enable Savings Plan – The Achieving a Better Life Experience (ABLE) has provided the opportunity for individuals with disabilities to open tax-exempt savings accounts to save for disability-related expenses without impacting eligibility for resource-based benefits. Individuals with disabilities can save more than a total of $2,000 in assets (cash, savings, etc.) in their name in a qualified ABLE account.
Firsthand Foundation – provides funding for individual children—both domestically and globally—who need assistance with clinical necessities (such as surgery, medication and therapy), medical equipment and travel related to care.
Government Benefits, Grants and Loans – Learn about government programs that provide financial help for individuals and organizations.
Partnership for Prescription Assistance – Helps qualifying patients without prescription drug coverage to get the medicines they need for free or nearly free as well as assistance finding low-cost clinics.
Possibilities – A financial resource for parents of children with disabilities. Parent Advocacy Coalition for Educational Rights (PACER) and the National Endowment for Financial Education (NEFE) collaborated on this publication. It’s purpose is to help you find ways to create a sense of order in your life and maintain control over your finances as you care for your child and prepare him or her for adulthood.
Rental and Housing Assistance – Programs and agencies in Omaha and Douglas County Nebraska focus on offering rental and housing assistance. This assistance is for individuals who are faced with an emergency, who have lost their job, or may be classified as unemployed who could qualify for grants or cash assistance to help pay their rent, security deposit, or other housing needs or expenses.
Scholarship Opportunities – Article on ideas and resources for Students with disabilities who may qualify for a number of unique scholarships.
Sports for Kids Foundation – Assisting physically and emotionally challenged children throughout the United States and Canada through sports-related fundraisers.
Bidet – Provides education on the health benefits of a bidet, the various options and a bidet buying guide.
Home Advisor – Provides cost guides and information about changing, remodeling or making additions to your home to accommodate people with disabilities.
Improvenet – Provides a wheelchair and handicap ramp cost guide, and information about building ramps.
National Association of Home Builders – This link provides information on remodeling and information about making your home safe, as well as a directory of CAPS (Certified Aging-in-Place Specialists) and how to contact them.
Nationwide Lifts – Lifts and other home modifications for accessibility.
Redfin-Real Time – An article from Redfin Real-Time about the home environment for those with disabilities. A guide that covers modifications for every area and room to make your home safer and more accessible.
USC Leonard Davis School of Gerontology – Provides library with documents directly and indirectly related to home modifications, a comprehensive list of web site links to the many different types of agencies and organizations involved with home modifications and supportive housing as well as educational videos and a limited list of products to consider for supportive home environments.
Barrier Free Home – This is a site for nationally listed classified ads for universally designed or wheelchair accessible homes. Always check with your local realtors first for listings in your area for homes that may suit your needs. If you live in Omaha, you may call United Cerebral Palsy of Nebraska for some local ideas (402-502-3572
Medical and Support Services
Children’s Hospital & Medical Center – Provides a very large variety of services and care in a multiple environments conducive to healing and comfort, including hospital care, outpatient clinics, and home care. Occupational, Physical and Speech Therapy are also included as services they offer. Located in Omaha
Children’s Rehab Center – Provide pediatric Occupational, Physical and Speech Therapy. Located in Grand Island, Hastings and Kearney, Aurora and Lincoln.
Faith Regional Health Services – Provides a variety of hospital-related services including orthpedics, women’s health services, home health, hospice and more. They provide Occupational, Physical and Speech Therapy at two locations. Located in Norfolk, NE.
Kid*Ability – Provides comprehensive pediatric Occupational, Physical and Speech/Language therapy services to children birth to 18 years of age in a variety of settings. They offer individual, small group and large group treatment opportunities. Located in Omaha.
Madonna Rehabilitation Hospitals – Provides medical and physical rehabilitation for adults and children. Specializes in complex medical, traumatic brain injury, spinal cord injury, pulmonary conditions, severe stroke, other neurological conditions and pediatric rehabilitation. Locations in Nebraska are Lincoln and Omaha.
Platte Valley Physical Therapy – Provides rehab for pediatric and adult populations. Located in North Platte, NE.
Tree Top Therapy – Provides therapy services tailored to children and adolescents with special needs. They are a specialized outpatient rehabilitation clinic providing Occupational, Physical, Sensory Integration and Speech Therapy. They are trained in the care and management of infants, children and adolescents. Locations in Nebraska include: Gretna, Kearney and Lexington.
2-1-1 Iowa/Nebraska – Provides a large variety of human services and resources for both everyday needs and times of crisis, including basic human needs, physical and mental health resources, employment support, support for older Americans and persons with disabilities, support for children, youth and families, volunteer opportunities and donation services.
Answers 4 Families – Providing information opportunities for dialogue, education and support to Nebraskans with special needs and their families by; developing and providing internet resources; and by encouraging others to do the same.
Assistive Technology Partnership-ATP provides services to explore potential funding sources, try equipment before buying, and have an assessment/consultation/ done by a qualified technology specialist at home, school or work. They help individuals locate and use assistive technology appropriate for their purpose.
AT4ALL – A free online service to list and find equipment in Nebraska. Can try out or borrow equipment for home, work, school or in the community. They recycle technology to benefit people with disabilities. Locations in Cozad & Omaha.
Autism Center of Nebraska (ACN) – Provides residential, vocational and transitional services, along with employment connections and respite care. Location in Omaha & Lincoln.
Brain Injury Alliance of Nebraska -A statewide non-profit that offers resources to help give people with brain injuries a chance to rebuild their lives, restore purposeful living, and to rebuild hope and optimism. Provide medical resources, service referrals, support groups, legislative advocacy opportunities and access to pertinent information.
Children’s Respite Care Center – Licensed as a Children’s Day Health Service and a specialized childcare center, CRCC provides programs and services to children and adolescents who have medical, developmental and behavior challenges. Two Locations in Omaha.
- CRCC is UCP of Nebraska’s partner for the Family Focus series in Omaha. Six times a year, this event brings together families facing similar challenges to draw strength and knowledge as well as relax and socialize.
Community Health Charities of Nebraska – A statewide fundraising federation dedicated to improving the health and wellness of all people.They provide a monthly calendar of information such as events, support groups & training opportunities. Serving Omaha, Lincoln and Greater Nebraska.
Disability Rights Nebraska -Was created to assist individuals with disabilities and their families in protecting and advocating for their rights. Operates seven federally funded protection and advocacy programs. Locations in Nebraska include Lincoln and Scottsbluff. firstname.lastname@example.org
Down Syndrome Association for Families of Nebraska – DSAF of Nebraska is a non-profit organization in Lincoln that offers support for individuals with Down syndrome, their families, friends, educators and professionals who share in their lives. DSAF provides education, networking, references, a forum and other items of interest relating to Down syndrome, including access to educational grants.
Dream Factory – is the largest children’s wish-granting organization for children ages 3-18 that does not limit its mission to children who have life-threatening illness. Local Chapter is in Lincoln.
Easter Seals Nebraska – Provides a variety of services to help ensure all people with disabilities have an equal opportunity to live, learn, work and play. Provides low interest loans for the purchase of assistive technology devices and services, such as: home & vehicle modification, hearing & vision aids, scooters, lift chairs, IPads, special software, batteries and chargers.
Hotline for Disability Services-Provides information and referral to Nebraskans who have questions or concerns related to disability. This includes rehabilitation services, transportation, special parking permits, legal rights,and any other questions related to disability. 1.800.742.7594
Masterpiece Ministry – Offers adults, teens and children with special needs the practical support and compassionate fellowship. Opportunities include: Sunday school classes, Sensory Sunday school classes, Buddy program for those who need 1:1 support & Respite nights. Located in Lincoln
Munroe Meyer Institute – The mission is to lead the world in transforming the lives of all individuals with disabilities and complex health care needs, their families and the community through outreach, engagement, premier educational programs, innovative research and extraordinary patient care. Varies specialized programs and support services available. Located in Omaha on the University of Nebraska Medical (UNMC) campus & present in more than 40 locations throughout the state.
Nebraska Resource and Referral System – The NRRS is the fastest, most accurate and convenient way of locating valuable resources online. This database provides individuals the opportunity to have a real choice in the diverse selection of service providers by allowing users to more easily locate and compare services of local and state agencies.
Nebraska Commission for the Deaf and Hard of Hearing (NCDHH) – Promotes and advocates for Nebraskans who are Deaf, Deaf-Blind, or Hard of Hearing. Nebraska offices in Omaha, Lincoln, Kearney, North Platte and Scottsbluff.
Nebraska Commission for the Blind and Visually Impaired (NCBVI) – Helps blind and visually impaired individuals find employment and achieve independent living skills, along with providing counseling, training and resources for a positive understanding of blindness and visual impairment. Nebraska offices located in Omaha, Lincoln, Norfolk, Kearney, North Platte and Scottsbluff.
Nebraska Early Development Network – Resource for early developmental needs, including referrals, a technical assistance guidebook, planning region grants, evidence-based strategies to improve outcomes for students with disabilities, discussion groups and various other services and supports for children birth to age three and their families.
Nebraska Special Needs Ministry Network – Provides a collaborative community where participants meet monthly to discuss issues, ideas, needs and solutions unique to special needs ministry. Located in Lincoln
Parent-to-Parent Local Chapter – Emotional & Informational support for families of children who have special needs. Matches parents seeking support with an experienced, trained ‘Support Parent’. Nebraska local chapter is housed at:
The Ollie Webb Center, Inc. 1941 South 42 Street, Suite 122 Omaha, Nebraska, 68105 402-346-5220
PTI Nebraska – a statewide resource for families of children with disabilities and special health care needs. Provide training, information and support to Nebraska Parent’s and others who have an interest in children from birth through twenty-six and who receive or might need special education or related services.
Radio Talking Book Service (RTBS) -Serves Nebraska and Southwest Iowa to provide human-voiced print information for individuals who are blind, visually impaired or have physical disabilities which prevent them from reading printed material.
Rejoicing Spirits – A program of Mosaic, Rejoicing Spirits is an innovative ministry that works to enrich the faith lives of people with intellectual and developmental disabilities, their families and friends and other supportive community members. They provide resources, support and coaching to help congregations include people with disabilities as active valued members. Located in Omaha
The Arc – promotes and protects the human rights of people with intellectual disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes. Ten chapters located throughout Nebraska.
Stories About People with CP or Similar Disorders
Dan Keplinger,artist – Site that provides links to inspirational stories/blogs/etc. related to Dan Keplinger, an artist and speaker with cerebral palsy.
The Lived Body-Experiences from Adults with Cerebral Palsy – Article by Karin Sandstrom focused on helping people get a deeper understanding of how adults with cerebral palsy experience living with a disability and how they manage daily life.
The Mighty – Publishes real stories by real people facing real challenges. They are creating a safe platform to tell stories, connect with others and raise support for the cause they believe in.