One-Stop Resource Guide:

This is a resource guide provided for you by United Cerebral Palsy of Nebraska.  We attempt to keep resources current and provide accurate and valid sources. The sources range from non-profits, government agencies and for profit companies. United Cerebral Palsy of Nebraska does not endorse any company listed below, and is not responsible for the content of the sites, but simply provides the information as a resource for you.

Every person with Cerebral Palsy is unique. If you notice a link that no longer works or have information that you would like for us to consider adding, please contact us.


Resources from United Cerebral Palsy (National):
  • My Child without Limits-a program of UCP, provides a wealth of information and resources for families and caregivers of individuals with cerebral palsy and a range of other disabilities.
  • My Life without Limits a program of UCP, a resource for adults with disabilities and their families tackling issues such as access to college, employment, transitions, relationships and other topics.
  • Each of us Remembers – A booklet published by UCP with stories and information from parents. It covers reacting to the news about a CP diagnosis, talking to family and friends about it and what to do next.
Information about CP and Living with CP

Cerebral Palsy Guide – A national organization that helps families and individuals affected by cerebral palsy. They provide educational material about CP so that parents and caregivers can be better prepared for raising a child affected by this developmental disorder.  Phone: 1-855-329-1008

Cerebral Palsy Guide-Book for Parents and Children About CP – Whether is is a fun adventure story that you and your child read together or an informative book that you enjoy on your own, there are many valuable resources available that can provide you with all you need to know about cerebral palsy.

World Cerebral Palsy Day – learn about our 6 key areas of focus and help create a global movement for children and adults with cerebral palsy                                               

Early School Years Fact Pack – This fact pack has been developed to assist teachers, teacher’s aides, students and parents in learning more about what might be helpful for children with cerebral palsy in the early school years.                                         

CP Tool Kit – This explores both the clinical aspects of diagnosis and treatment, and the impact on the family, with practical and positive advice from other parents of children with cerebral palsy.  It also has a glossary of terms and a number of personal stories from parents and adults living with CP.  Subscribe to the Foundation newsletter to download the PDF version of the tool kit here                                                   

Getting to Know Cerebral Palsy – A training resource for facilitators, parents, caregivers and persons with cerebral palsy, particularly in low resource countries. It promotes a participatory learning approach where parents can increase their knowledge and skills in caring for a child with cerebral palsy in an understanding environment.   Available in English and Spanish.

My Child at Cerebral Palsy.org -The ultimate resource for everything cerebral palsy. Phone: 1-800-692-4453

CPNow – Provides educational resources, initiates wellness campaigns and funding research focused on addressing the early interferences in brain development which can lead to CP.

Special Needs Mom – An on-line social network for families of children with special needs to connect, find information, share and offer support, and be inspired.

 

Durable Medical Equipment

Frontier Home Medical – Home health supplies, mobility equipment, home modification equipment.  Locations in Nebraska are: Cozad, McCook, Gothenberg, Holdrege, North Platte, Lincoln and Omaha.

Mid Nebraska Mobility, Inc. – Mobility equipment, home modification, home health supplies.  Locations in Nebraska are:  Kearney and Grand Island.

Total Respiratory and Rehab – Mobility equipment statewide, home health supplies and home modifications in Omaha and Lincoln areas.

Jim’s Home Health Supplies – Provides a full range of medical equipment and healthcare supplies, relating to bathroom safety, mobility and respiratory needs along with compression stockings, blood pressure monitors and more.   Located in Lincoln, NE.

Kohll’s Pharmacy and Homecare – Provides access to a variety of needs, including durable medical equipment, lift chairs, wheelchair vans, home modifications, vaccinations, pharmaceutical needs and more.  Locations in Nebraska include Omaha and Lincoln and Malvern, Iowa.

Fashionable Canes-Many varieties of canes, ice grippers, quad canes, canes for the visually impaired and folding canes.

Shopko-Home Health Care Products – Provides access to a variety of health care needs, including daily living aids, items related to bathroom safety, canes and crutches, transport chairs, walkers and more.  Several locations throughout Nebraska, see site for details.

Walgreens-Home Health Care Solutions – Provides access to a wide variety of health care needs, including mobility equipment and accessories, daily living aids, items related to bathroom safety, bedding accessories, canes, crutches, transport chairs walkers and more.

Nuprodx Inc.-Provides access to a variety of shower chair

 

s and tub/slider systems, including pediatric options.  Also has some wheelchair accessory options available.

Triumph Medical Services LLC – Sell, rent and service many different brands of durable medical equipment.  Locations in St. Louis, MO. and Springfield, MO areas

Adaptive Clothing

Therawear-Supplies support socks, compression stockings and protective seamless socks for diabetes designed to promote health for both adults and children.

Personal Touch Healthcare Apparel-Adaptive clothing, hospital clothing, incontinence products, sleepwear, robs, adult bibs, nonskid slipper socks and other disposable products.

Silverts-Adaptive clothing for women and men senior clothing, elderly clothing, shoes and slippers.

Automotive Mobility

Mobility Motoring– A local resource for wheelchair accessible vans and carries a full line of adaptive equipment products. They provide financing and free evaluations. They also install, diagnose, maintain and repair adaptive equipment.

Heartland Mobility– Serving Nebraska and surrounding areas with wheelchair accessible vehicles, handicap vans, wheelchair lifts, hand controls and more.

Siebert Mobility – Serving Nebraska, Iowa and Arkansas with wheelchair vans, lifts and mobility products.

Wheelers Accessible Van Rentals – Wheelchair van rentals throughout Nebraska in the Omaha and Lincoln areas.

Nebraska-Based Resources

2-1-1 Iowa/Nebraska – Provides a large variety of human services and resources for both everyday needs and times of crisis, including basic human needs, physical and mental health resources, employment support, support for older Americans and persons with disabilities, support for children, youth and families, volunteer opportunities and donation services.

Assistive Technology Partnership-ATP provides services to explore potential funding sources, try equipment before buying, and have an assessment/consultation/ done by a qualified technology specialist at home, school or work. They help individuals locate and use assistive technology appropriate for their purpose.

AT4ALL – A free online service to list and find equipment in Nebraska. Can try out or borrow equipment for home, work, school or in the community. They recycle technology to benefit people with disabilities.  Locations in Cozad & Omaha.

Autism Center of Nebraska (ACN) – Provides residential, vocational and transitional services, along with employment connections and respite care. Location in Omaha & Lincoln.

Easter Seals Nebraska – Provides a variety of services to help ensure all people with disabilities have an equal opportunity to live, learn, work and play.

Disability Rights Nebraska -Was created to assist individuals with disabilities and their families in protecting and advocating for their rights. Operates seven federally funded protection and advocacy programs.  Locations in Nebraska include Lincoln and Scottsbluff.   info@disabilityrightsnebraska.org

Hotline for Disability Services-Provides information and referral to Nebraskans who have questions or concerns related to disability. This includes rehabilitation services, transportation, special parking permits, legal rights,and any other questions related to disability. 1.800.742.7594

Nebraska Commission for the Deaf and Hard of Hearing (NCDHH) – Promotes and advocates for Nebraskans who are Deaf, Deaf-Blind, or Hard of Hearing.  Nebraska offices in Omaha, Lincoln, Kearney, North Platte and Scottsbluff.

Nebraska Commission for the Blind and Visually Impaired (NCBVI) – Helps blind and visually impaired individuals find employment and achieve independent living skills, along with providing counseling, training and resources for a positive understanding of blindness and visual impairment.  Nebraska offices located in Omaha, Lincoln, Norfolk, Kearney, North Platte and Scottsbluff.

 

Radio Talking Book Service (RTBS) -Serves Nebraska and Southwest Iowa to provide human-voiced print information for individuals who are blind, visually impaired or have physical disabilities which prevent them from reading printed material.

Family & Caregivers Support:

Brain Injury Alliance of Nebraska -A statewide non-profit that offers resources to help give people with brain injuries a chance to rebuild their lives, restore purposeful living, and to rebuild hope and optimism.  Provide medical resources, service referrals, support groups, legislative advocacy opportunities and access to pertinent information.

Children’s Respite Care Center Licensed as a Children’s Day Health Service and a specialized childcare center, CRCC provides programs and services to children and adolescents who have medical, developmental and behavior challenges.  Two Locations in Omaha.

  • CRCC is UCP of Nebraska’s partner for the Family Focus series in Omaha.  Six times a year, this event brings together families facing similar challenges to draw strength and knowledge as well as relax and socialize. 

Disability is Natural – The mission is to encourage new ways of thinking about developmental disabilities, in the belief that our attitudes drive our actions, and changes in our attitudes and actions can help create a society where all children and adults with developmental disabilities have opportunities to live the lives of their dreams, included in all areas of life. There are hundreds of articles to read, download and share.

Munroe Meyer Institute – The mission is to lead the world in transforming the lives of all individuals with disabilities and complex health care needs, their families and the community through outreach, engagement, premier educational programs, innovative research and extraordinary patient care.  Varies specialized programs and support services available.  Located in Omaha on the University of Nebraska Medical (UNMC) campus & present in more than 40 locations throughout the state.

Nebraska Early Development Network – Resource for early developmental needs, including referrals, a technical assistance guidebook, planning region grants, evidence-based strategies to improve outcomes for students with disabilities, discussion groups and various other services and supports for children birth to age three and their families.

Parent-to-Parent Local Chapter – Emotional & Informational support for families of children who have special needs.  Matches parents seeking support with an experienced, trained ‘Support Parent’.  Nebraska local chapter is housed at:                  The Ollie Webb Center, Inc.                                                                                                         1941 South 42 Street, Suite 122                                                                                                   Omaha, Nebraska, 68105                                                                                                                 402-346-5220

People First – Promotes self-advocacy and provides access to groups of people with learning difficulties, people with intellectual disabilities, people with developmental disabilities and/or people with disabilities who speak up for themselves and work to improve the lives of their members.

 

PTI Nebraska – a statewide resource for families of children with disabilities and special health care needs. Provide training, information and support to Nebraska Parent’s and others who have an interest in children from birth through twenty-six and who receive or might need special education or related services.

 

 

 

Families
The Children’s Respite Care Center
2010 North 88th Street
Omaha, NE 68134

UCP of Nebraska’s partner for the Family Focus series. Six times a year, this event brings together families facing similar challenges to draw strength and knowledge as well as relax and socialize.

Phone: 402-496-1000
Fax: (402)496-4209
E-Mail: ccc@crccomaha.org
URL: http://www.crccomaha.org/

Financial Planning

 

Funding Sources

Community Health Charities of Nebraska
7101 Newport Avenue, Suite 311

Omaha, NE 68152

Community Health Charities of Nebraska is a statewide fundraising federation dedicated to improving the health and wellness of all people.

Phone: (402) 614-8500
Fax: (402) 572-9019
URL: http://www.chcne.org
Healthcare
Children’s Hospital – Omaha

8200 Dodge Street
Omaha, NE 68114

Children’s Hospital Family Resource Library provides information on a variety of health topics and offers a comfortable, inviting environment for you to access medical and educational resources.

Phone: (800) 437-0272
Fax: (402) 955-6959
URL: http://www.chsomaha.org

Independent Living
Parents
PTI Nebraska
3135 North 93rd Street

Omaha, NE 68134

Parent Training and Information for Families of Children with Disabilities. PTI Nebraska Parent — Professionals available to offer training and information for all families of children with special needs.

Phone: (402) 346-0525

E-Mail: info@pti-nebraska.org
URL: http://www.pti-nebraska.org

Pediatric Physical, Occupational & Speech Therapy

ProCare3 Pediatric Physical, Occupational, & Speech TherapyProCare3 provides free developmental screenings and welcomes parents to tour our pediatric therapy clinics which provides therapy for many different conditions. You’ll find on-site warm water aquatic therapy, augmentative communication labs, feeding & swallowing
clinics, and fun and creative environments that your children will love. We also encourage parents to email ProCare3 with any questions at crodgers@procare3.com.  We offer extended hours with Saturday appointments so parents won’t have to miss work!

Phone:402-330-3211 Ext. 108, Fax: 402- 330-0826

Website: www.procare3.com

Kid*Ability – Kid*Ability provides comprehensive pediatric therapy services to children birth to 18 years of age. Our therapy services include Occupational, Physical, and Speech/Language Therapy. We offer services in a variety of settings, including our pediatric clinic, in the home, schools, and daycares, to best fit your child’s needs.  At Kid*Ability, we are committed to providing your child high-quality, specialized and compassionate services.  Our skilled, experienced pediatric therapists are dedicated to achieving the best possible outcomes for your child.  We offer individual, small group, and large group treatment opportunities.  We also offer free developmental screenings.  Call now to schedule an appointment for your child!

Address:  8031 West Center Road, Suite 300  Omaha, NE 68124                      Phone:  402-763-4408

Website: www.kidabilityomaha.com